IMAGE: Cheak-Zamora found that many young adults with autism used animals of all sizes as a source of companionship. view more
Credit: Participant in MU’s Photovoice Project
COLUMBIA, Mo. – An estimated 50,000 American adolescents with autism spectrum disorder (ASD) will turn 18 each year. Past research has indicated that the transition from school to adulthood presents significant challenges to youth with ASD, however, gathering firsthand accounts of these challenges has been limited due to youth’s limited participation in research. Now, new studies from the University of Missouri, found that through use of photographs, adolescents with ASD were able to share their accounts of difficulties transitioning out of school, their struggles with socialization and how they use animals as a source of companionship.
“While we have long known that youth with ASD face challenges transitioning to adulthood, most research has focused only on perspectives of parents or caretakers,” said Nancy Cheak-Zamora, as assistant professor in the School of Health Professions and a researcher at the Thompson Center for Autism and Neurodevelopmental Disorders. “In order to truly understand the perspective of young people with ASD, who struggle with limited communication and fears, we needed to ‘think outside the box’ to help them share their stories. Giving them cameras so they could tell their stories through images allowed us to determine what these young adults thought and felt.”
Cheak-Zamora, along with Michelle Teti, assistant professor in the School of Health Professions and Anna Maurer-Batjer, a graduate student in the School of Social Work, worked with 11 youth with ASD, between the ages of 16 and 25. Using Photovoice, a flexible research method that allows participants to use images to identify and share their experiences, participants were given cameras and instructions. They were asked to …